Having a disability, which is very unknown to the general public, I would like to be the change and educate everyone about this disease. It is called Ataxia. Everyone who sees me, or anyone else with the disease, would think we have either MS or have had a little bit too much to drink. Let me explain, Ataxia is really a symptom of something else much greater happening in the body.
So what is an image of God? It is an image of the beautiful young being who serves God as a healthcare worker. It is the wonderful minister who guides his or her congregation. It is the poor homeless individual with a dog on a rope leash. It is the one who is addicted to drugs and or alcohol. We are all reflections, no matter how imperfect or unfortunate, of a wonderful, perfect God Who loves us each and individually every one of us with a perfect and all powerful LOVE
When the fire in me
Meets the ice in you
All that’s left are
The damp, bitter ashes.
Having a disability, which is very unknown to the general public, I would like to be the change and educate everyone about this disease. It is called Ataxia. Everyone who sees me, or anyone else with the disease, would think we have either MS or have had a little bit too much to drink. Let me explain, Ataxia is really a symptom of something else much greater happening in the body. Ataxia is is a Latin term for irregular gait; hence, stumbling around like you’ve had too much to drink. One can have this symptom from anything from a stroke to, in my case, a Hereditary Degenerating Cerebellum. It began when I was born. I had a mutation in my DNA causing my body to produce a protein which attacks my cerebellum causing this degeneration. The cause is unknown and there is no medication for it, just diligence to my surroundings (like hanging onto banisters). Granted, as we all age , our cerebellum shrinks in size anyway. Mine just happens to be shrinking or degenerating at a quicker rate. So, I am 50 years old with the balance (or lack of) of a 85 year old. W hat is the most frustrating, are the judgments, snickers, or sideways glances I get because the public is uneducated about the disease. “I assure you I have not had too much to drink— it’s only ten thirty in the morning. I am doing the best I can.” These are the things I want to shout and more. I have been told to walk with a cane, so people will know that I do, indeed, have a disability. But I adamantly refuse. Why rely on a crutch until I feel I have to??? There are those with forms of Ataxia who are in wheelchairs and on walkers, and my heart goes out to them, but to look at them you know they have a disability When you look at me, or anyone else, who might stumble or lose their balance, don’t be so quick to judge, snicker, or glance sideways at me. Give the benefit of the doubt until you know all the facts and change your thinking.
You are definitely my ‘ICK’. Even though you and I happened years ago. I still hold onto to the memory to remind me how far I’ve come. I still remember your untruths and all the excuses you would conjure up. Now I relish and search for people of truth and integrity. I remember the lows you brought me to and the ways I clung to you coattails. Now I never stoop and cling to my own coattails. You were a wolf in sheep’s clothing and I am glad I got away. I take my share of the responsibility for being so naive. You taught me the importance of having positive vibes in your life and that ‘your thoughts follow your actions.’ I “ICK” when my thoughts turn toward you, but I learned from my mistakes! So thank you…………..
Having had Stage I Breast Cancer three years ago, I chose to do a double mastectomy. Later, I was confronted by a friend who was encountering the same diagnosis. Her lump, like mine, was in the early stages. Unlike, my situation, she was given the choice of having a mastectomy or a lumpectomy. After weighing out her options, she chose the latter treatment. She had no Breast Cancer history in her family and did the genetic BRAC test, which came back negative. I did not tell her until after her procedure that, given her circumstances, I was so glad she chose to do the lumpectomy. I would never recommend any of my friends to go through having a double mastectomy unless they were faced at a dead end wall like me (having a family history of BC). I know the choice is a personal one, but if you don’t have to go through it, why do it????
Dear 70 year old,
Well, you made it through your teens, 20s, 30s, 40s, 50s, 60s, and here you are in your 70s! You have done a great job, baby. Especially with all the curve balls that have been thrown your way. I know you always said that you had to live and play the hand you were given. I just can’t believe how gracefully you have done it. I have never heard you complain. I have never ever heard you ask, “WHY ME?” And never have I heard you be unkind to others. I just hope one day, I grow up to be as beautiful as you. on the inside and out!